Supporting Infants with Life-Limiting Conditions and their Parents
Finding out that you’re pregnant can be exciting and overwhelming. But finding out that your baby may have a life-threatening illness can be devastating — for you and your family.
As you face difficult health care decisions for your baby and uncertainty about his/her medical condition, our experienced team is here to help provide support along the way.
The Scripps Hospice Perinatal Program team is trained to answer your medical questions, provide appropriate intervention and offer compassionate emotional and spiritual support.
We understand that this is a challenging time for you and your family. Our goal is to help communicate your wishes to the medical team in an effort to help maximize the quality of precious time you have with your baby before, during and after birth.
Our multidisciplinary team includes board-certified hospice and palliative care doctors, a pediatric nurse, social workers and spiritual counselors. In preparation for the birth of your baby, our team is available for the following:
- Meeting with you at your home to address any ongoing issues or concerns on a regular basis
- Consulting 24 hours a day
- Accompanying you to our doctor visits
- Preparing you emotionally for the arrival of your baby
- Providing spiritual support when requested
Individualized care plans
We assist in creating an individualized plan for your baby’s birth that takes into account your wishes and needs. This process can help you make the best decisions for you and your family, while addressing all aspects of your baby’s birth to help make the birth experience as comfortable as possible.
The care plan may include:
- Individualized birthing plans
- Psychosocial support
- Nursing consultation
- Collaboration with the OB-GYN team
- Spiritual care
- Resource referrals
We believe that each moment with your baby is precious and should be embraced with compassion and comfort.